• Research reveals new ways of understanding ADHD

    AbrainsMore than 6.4 million U.S. children have received a diagnosis of attention-deficit/hyperactivity disorder, according to the Centers for Disease Control and Prevention. Despite the prevalence of ADHD, researchers continue to search for answers about what causes the disorder, why it affects children differently, and how to best treat each individual case.

    Related Story: How childhood trauma could be mistaken for ADHD

    Three very different studies show the potential for scientific research to offer fresh insight into these unanswered questions.

    • The first study, published in a recent issue of the Journal of Child Psychology and Psychiatry, found that the condition might be influenced by a child’s socioeconomic environment.
    • Meanwhile, in 2012, scientists looked at how parenting style affected behavior in children who possessed genotypes associated with ADHD. Their findings, published in the Journal of Abnormal Child Psychology, revealed that negative parenting predicted inattention symptoms in certain children.
    • Finally, in the third study, which is currently unpublished, U.C. Berkeley researchers tracked and analyzed long-term outcomes for girls who were both diagnosed with ADHD and experienced severe abuse or neglect. The results indicate that experiencing ADHD and trauma may put some youth at an increased risk for eating disorders, depression and suicide later in life.

    Study #1: Dr. Ginny Russell and her colleagues at the University of Exeter set out to better understand how a child’s socioeconomic standing might play a role in the development of ADHD. Russell firmly believes that ADHD is indeed a brain disorder with genetic underpinnings, but she also worries that it has been characterized as a “context-free condition.” Time and again, studies have shown that poor or disadvantaged children are more likely to have ADHD, and this fact struck Russell.

    Some researchers have argued that this increased likelihood could be the result of reverse causality, or in other words, that the difficulty of parenting a child with behavioral problems might lead to economic hardship and divorce. In Russell’s study, which used data from a longitudinal study of more than 19,000 children in the United Kingdom, low-income families were more likely to have a child with ADHD – but that couldn’t be traced back to reverse causality. In fact, household income for families with an ADHD-diagnosed child didn’t decline over a period of several years compared to families without a diagnosis. Both sets of families had matching earnings at the start.

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  • How childhood trauma could be mistaken for ADHD

     

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    [Photo credit: woodleywonderworks, Flickr]

    Dr. Nicole Brown’s quest to understand her misbehaving pediatric patients began with a hunch.

    Brown was completing her residency at Johns Hopkins Hospital in Baltimore, when she realized that many of her low-income patients had been diagnosed with attention deficit/hyperactivity disorder (ADHD).

    These children lived in households and neighborhoods where violence and relentless stress prevailed. Their parents found them hard to manage and teachers described them as disruptive or inattentive. Brown knew these behaviors as classic symptoms of ADHD, a brain disorder characterized by impulsivity, hyperactivity, and an inability to focus.

    When Brown looked closely, though, she saw something else: trauma. Hyper-vigilance and dissociation, for example, could be mistaken for inattention. Impulsivity might be brought on by a stress response in overdrive.

    “Despite our best efforts in referring them to behavioral therapy and starting them on stimulants, it was hard to get the symptoms under control,” she said of treating her patients according to guidelines for ADHD. “I began hypothesizing that perhaps a lot of what we were seeing was more externalizing behavior as a result of family dysfunction or other traumatic experience.”

    Considered a heritable brain disorder, one in nine U.S. children—or 6.4 million youth—currently have a diagnosis of ADHD. In recent years, parents and experts have questioned whether the growing prevalence of ADHD has to do with hasty medical evaluations, a flood of advertising for ADHD drugs, and increased pressure on teachers to cultivate high-performing students. Now Brown and other researchers are drawing attention to a compelling possibility: Inattentive, hyperactive, and impulsive behavior may in fact mirror the effects of adversity, and many pediatricians, psychiatrists, and psychologists don’t know how—or don’t have the time—to tell the difference.

    Though ADHD has been aggressively studied, few researchers have explored the overlap between its symptoms and the effects of chronic stress or experiencing trauma like maltreatment, abuse and violence. To test her hypothesis beyond Baltimore, Brown analyzed the results of a national survey about the health and well-being of more than 65,000 children.

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  • Am I really the worst? A day in the life of parenting special needs children

    AfamilyThe other day after a particularly lively visit to PetSmart with my husband and our two special needs children, a woman who had been in the store at the same time drove up and said: “You are the worst parents I have ever seen.” She drove off before I could respond, not that I had a witty comeback. To clarify, no animals were hurt (or even handled), nothing was damaged and we did not leave any messes for store employees to clean up. We were probably the loudest family in the store, but that is normal in our world.

    I am confident I cannot possibly be the worst parent out there.

    My children, who both struggle with multiple disabilities, had a fun outing to the pet store with two parents who love them dearly. Despite their challenges, they are on the honor roll at school, play sports and engage in other extracurricular activities and have received awards for their accomplishments. Of course, it is easy to listen and accept negative comments of someone who sees my life for less than 15 minutes and makes a faulty assessment. I am like every other parent: I worry. I have doubts and fears. I doubt myself. I question if I am doing enough.

    Most parents worry about their children, but parents of special needs children need to know the world is a better place because they are in it. We are parents who have been to more medical appointments with our young children than most adults have been to in their whole lives.  Our children often have had multiple diagnoses yet don’t really “fit” any of them. We sometimes feel isolated because our children don’t seem to fit into any group, even the “special needs” ones. We’ve scoured books, magazines and web sites in the hopes of finding something new that might be effective for our children’s needs. We feel exhausted, overwhelmed and incompetent on a daily basis but still get up every morning and try to provide the best for our children. We fight schools, doctors, friends and even family members every day just to get them to understand the basic needs of our children. And after all of that, we have to put a positive spin on some very ugly comments our children hear on a regular basis.

    To paraphrase the late Erma Bombeck, God is looking down from heaven and pairing children with appropriate parents. When He chooses parents for a handicapped child, He decides they must be happy so the child can know laughter; they cannot have too much patience or they will drown in a sea of self-pity and despair; they must have a sense of self and independence so they will be able help the child who is in her or his own world function. They must to be a little bit selfish to separate themselves from the child occasionally to survive. They will see clearly ignorance, cruelty and prejudice and be able to rise above it.

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  • California Assembly Health Committee OKs ACEs resolution 16-0

    ImageThe California Assembly Health Committee today approved, by a vote of 16-0, a resolution to encourage statewide policies to reduce children’s exposure to adverse childhood experiences. California took a page from Wisconsin’s playbook with the introduction of legislation (California Assembly Concurrent Resolution (ACR) No. 155) on May 28. It drew upon ideas from Wisconsin’s legislation (Senate Joint Resolution 59), approved by the legislature this early this year. Both the Wisconsin resolution and the California proposal encourage state policy decision-making to consider the impact of early childhood adversity on the long-term health and well being of its citizens.

    Before the vote was taken on June 17, the lead sponsor of the California bill, Assemblymember Raul

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  • Vermont legislator hopes to transform his “Adverse Legislative Experience (ALE)”

    ImageThe principal sponsor of the Vermont ACEs bill, Dr. George Till, has an ALE (not a typo) score of at least one. He describes losing six of seven sections of the ACEs legislation as an “Adverse Legislative Experience (ALE)”. But if re-elected this November, he plans to “push again next session” for provisions to embed the ACEs research findings into medical practice. While “extremely disappointed” with the outcome of the conference committee dropping most of his bill’s provisions, his resiliency is evident as he looks ahead to the next opportunity to improve health outcomes.

    On May 10, the last day of the Vermont legislature, a broad healthcare bill (H. 596) passed that included the one remaining ACEs provision. This section mandates a review by Jan. 15, 2015 of “evidence-based materials on the relationship between adverse childhood experiences (ACEs) and population health and recommend to the General Assembly whether, how, and at what expense ACE-informed medical practice should be integrated into

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  • Q-and-A: Pediatrician screens parents, kids for trauma because her ACE score is 9

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    Dr. Tina Marie Hahn

    Dr. Tina Marie Hahn is a pediatrician in Alpena, Michigan. She agreed to answer these more personal questions as part of an interview about how she and other pediatricians are screening children — and parents — for adverse childhood experiences.

    Q. What personal or professional moment or event in your life inspired you to work on adverse childhood experiences (ACEs)?

    A. When I was four-and-a-half years old, I saw my father murder my grandmother.

    My father was quite a demanding man — he felt as if everyone owed him. But he was also lazy. He didn’t work my entire childhood. He supported himself from state welfare checks intended to provide for his three children. My father wanted Grandma Hahn to give him money for cigarettes, but she refused. She told him he needed to go work at the hardware store and do something productive before she would give him more money. He became VERY angry and he pushed her down her basement steps.

    After pushing her, he screamed angrily: “I don’t care if she dies. When she dies, I’m going to piss on her grave.” It terrified me. It seemed as if Satan possessed him. Even though I was frightened, I stayed at grandma’s side for a day and a half, trying to give her water from a bathroom Dixie cup because she kept saying that she was thirsty. My screaming father and my mother, ignoring the whole thing, left Grandma trapped at the bottom of those steps for almost two days until her cries ceased.

    Diane, my mother, did nothing, not because she was afraid of my father, but because she followed him around

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  • Patrick Kennedy delivers raw, revealing speech to mental health advocates

    Just before former Rhode Island Congressman Patrick Kennedy delivered the closing speech to attendees of the National Council for Behavioral Health conference, my daughter and I had a warm, light-hearted conversation with him outside the hall about my daughter’s work in peer services in Texas, about her anticipated motherhood, his young children, and about a Texas ranch he visited once that is bigger than the entire state Rhode Island. We stuck around to hear him talk, even though we thought we could probably miss it since it was part of the send-off for attendees going on visits to Capitol Hill and we weren’t going. We were grateful we stayed; here’s why.Image

    Kennedy gave a raw and revealing talk about his mental illness, addiction, and the “God-sized” hole in his soul before his recovery. He said his illness is “bio/psycho/social”, but added that it is also “spiritual.” After achieving successes in his political career—election to the Rhode Island state legislature at 21, Member of Congress at 27, master fundraiser for Democrats—you “would have thought that would have filled the hole in my soul but it didn’t.”

    After being arrested “on the high seas, in airports, and by traffic cops,” and being in rehab over and over again, he felt that as long as he was re-elected, he was managing. He was, after all,  meeting the family’s definition of success by winning elective office and serving the public.

    “Would I have freely chosen to bring such disregard, such disdain, and antipathy for me and bring shame on my family, like I woke up one day and said this is how I want to be perceived — as an alcoholic, drug addict who can’t get his life together? That’s not what I want for my life. And yet it was the inevitable result of me living in my illness and not knowing there was a solution. And of course I was given solutions and pointed to rehab over and over again. You would have thought I would have gotten it through my thick head that I had a problem. But my real problem was denial, thinking that if I could just continue to function and manage—continue to get re-elected­—then I must be okay.”

    Then three years ago, after crashing into a barrier at the U.S. Capitol, he waited for the “final jackpot.” He woke up, not remembering what had happened the night before. Did he have a Chappaquiddick of his own (a referral to an accident that involved his father, Sen. Edward Kennedy)? Fortunately, the event took place at 3:00 a.m., when the streets and sidewalks, were empty and no one was hurt.

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