About
Over the last 15 years, research has shown that childhood trauma injures a child’s brain. It impairs the brain’s physical development and function. You can see the effects of trauma on a brain scan. The result: These adverse childhood experiences (ACEs) cause kids to have a hard time learning, making friends and trusting adults. They can’t keep up in school, so they shut down or get in fights. They’re the “problem” kids. Schools suspend them. There’s lots of ways for kids to cope with their trauma. Alcohol. Drugs. Smoking. Food. Kids become daredevils and break their bones. Sleep around and get STDs. Grow up too fast and become workaholics.
All this helps numb painful memories: Years of beatings by dad, who also walloped a kid’s siblings and mom. Enduring forced sex by an uncle who visited regularly. Being rousted out of bed at 2 a.m. by a drunk mother to be yelled at for hours. These kids’ coping “drug of choice” – smoking, drinking, food, sex, work – helps them escape from the misery of feeling like failures or that, somehow, they were responsible for the trauma they experienced. It also helps them take the edge off their feelings of isolation and abandonment when our institutions further traumatize them by suspending them from school, by putting them in dysfunctional foster homes, by restraining them or putting them in isolation. Asking them: “What’s wrong with you?” instead of “What happened to you?”
The double whammy of the toxic effects of severe stress on a developing brain and years of coping behaviors — which kids regard as solutions, not problems, even into adulthood — have long-term effects. When they’re adults, the trauma they experienced as a child reaches from the past to deal another cruel blow — chronic diseases that appear when they’re adults. Diabetes. Heart disease. Depression. Lung cancer. The list goes on. The diseases that cost our country billions of dollars economically, and an incalculable cost emotionally.
The more types of childhood trauma a person has, the more likely she or he will have a chronic disease. In other words, the higher your ACE score, the more problems you’ll have as an adult. The ACE Study, which began as a joint research project of Kaiser Permanente in San Diego and the U.S. Centers for Disease Control and Prevention, looked at 10 different types of childhood trauma. These are the five usual suspects: physical, sexual, and emotional abuse; physical and emotional neglect. And five types of family dysfunction: a parent who’s an alcoholic or diagnosed mentally ill, a battered mother, a family member in prison, and a parent who disappears through abandonment or divorce.
The picture’s a bit grim:
- Only 30 percent of us have no ACEs.
- They rarely appear alone — if there’s one type of childhood trauma, there’s a 95 percent likelihood that there are others.
- They’re very common, even in predominately white, middle- to upper-middle class college-educated Americans.
Do you want to know your ACE score? You can take a shortened version of the ACE questionnaire on this site, at Got Your Ace Score?. That section also has information about the genesis of the ACE Study.
ACESTooHigh is the go-to site for background, news and information about:
- the Adverse Childhood Experiences Study,
- developmental neurobiology — how severe stress and trauma affect a child’s developing brain and nervous system
- epigenetics — how our genes turn off and on in response to our experiences and social environment.
Links to this research are posted on the Research section.
ACESTooHigh is also a site that covers what towns, cities, states, social service agencies and organizations, schools, the juvenile justice, criminal justice, public health and medical communities are doing to reduce the burden of ACEs for the tens of millions of people in the United States who have high ACE scores. Links to those projects and programs are posted on the ACEs in Action page. There’s also an ACESTooHigh network for people who work in these communities to share best and worst practices, information about upcoming events, and to set up groups who want to collaborate on projects.
ACESTooHigh is a place where people can tell their personal stories about how child trauma affected their lives and health, and how they have — or have not, as the case may be — made peace with the past. Those can be found on Our Stories. You’re welcome to set up groups on the ACESTooHigh network also.
The Resources section of the site provides links to useful presentations, backgrounders, reports, and ACE concepts in the news.
Jane Stevens is the editor of ACESTooHigh. If you want to contact me, do so at stevens.j.e.12 at gmail dot com. I welcome your tips, contributions, corrections and ideas. If you’re interested in contributing regularly or irregularly, I can set up you up to post to the site.
I’m a long-time health, science and technology journalist. Most recently, I was director of media strategies at The World Company in Lawrence, KS, where we developed a local health news site called WellCommons, which is a model for a network of local health sites I’m creating in California. I’m on an advisory group for ReportingonHealth.com, an online community of USC Annenberg’s California Endowment Health Journalism Fellowships. I’m also co-director, with Dr. Lori Dorfman, of the Reporting on Violence project, which has operated out of the Berkeley Media Studies Group since the mid 1990s. I’ve taught at UC Berkeley’s Graduate School of Journalism and worked with a team to establish what is now the Knight Digital Media Center. I’ve done TV reporting for WGBH; was a copy editor, assistant foreign-national editor, sci-tech reporter and columnist for newspapers (Boston Globe, the old San Francisco Examiner); and a video journalist for New York Times TV. I founded a health/science/technology feature service with more than 20 client news organizations worldwide. I’ve done magazine writing (Science, Nature, National Geographic, Technology Review, Los Angeles Times Magazine); was a multimedia journalist, doing reporting for Discovery Channel’s Web site; and led teams to create TOPP.org and the Great Turtle Race of 2007. I’ve lived and reported from Kenya and Bali, Indonesia; have been to the bottom of the Atlantic Ocean on the deep-sea submersible Alvin, and to the “bottom of the world” in Antarctica three times on research icebreakers.
I’ve been fortunate to have been awarded several fellowships during my career, including two from the National Science Foundation and one from the Australia Antarctic Division for travel to Antarctica, a Reynolds Journalism Fellowship at the University of Missouri, and the Knight-McCormick Leadership Institute at the University of Southern California’s Annenberg School for Communication & Journalism.
Although this site was launched a couple of years ago, it only began getting my full attention a couple of months ago. Since some parts of the site are still under construction, your patience is greatly appreciated. I’m also writing a book about the link between child trauma and adult health — slowly writing it — and as I finish parts of chapters, I’ll ask the community that gathers here for feedback.
Comments are welcome, as long as the discussion is civil. No cyber-trauma allowed.
New National Data Just Released! For the first time, national data on the prevalence of ACES among US children is available. Findings from the 2011/12 National Survey of Children’s Health show that nearly a third of US youth age 12-17 have experienced two or more adverse childhood events (30.5%), with a range of 28.9% to 53.7% across US states. http://childhealthdata.org/browse/allstates?q=2614&g=448&a=4577
Respond here or go to http://www.childhealthdata.org for more information!
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Hi, Jeanette:
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Hello, my name is Martin Vivek.
I saw that you mentioned PTSD.VA.GOV along with a few other great resources
on this page: [http://acestoohigh.com/2012/04/10/alexithymia-emotional-neglect-capitalism-how-are-they-related-2/]
I wanted to recommend the addition of http://www.ptsdalliance.org/ which
offers great information, has numerous resources, and also discusses
substance abuse treatment. Something that many other organizations fail to
recognize yet is a very common challenge people suffering from PTSD
encounter.
Let me know your thoughts and thank you for your time
Jane, I’ve been on your mailing list since early June and find your posts more useful than any others I receive or go digging for. In my opinion, the ACE project is to Wellness Psychology what continental drift was to Geology — a unified field theory. It’s very exciting to watch it unfold and gain momentum. I run a non-profit (“social profit”) that believes youth voices can do a lot to heal the world. We write a column together that is published in several newspapers reaching about a million people a week. It’s can be read at http://www.straighttalkTnT.com. I plan to mention the ACE project in next week’s column. Thank you for your work, Lauren
Thanks, Lauren. LOVE the column you do with teens. You have an incredible history — and are obviously putting your past to work to benefit kids. I’ll put a link to the site on ACEsTooHigh.
I hope you join this site’s social network, ACEsConnection. Nearly 500 people have joined so far, all by word of mouth. In the next few days, we’ll post a fairly extensive resource section and begin doing some outreach.
Your analogy of ACEs being like the theory of continental drift is so very apropos.
Cheers, Jane
Jane,
Thank you for your kind words and for posting a link to Straight Talk TnT. Yes, I was very lucky to get involved with some great teachers and guides when I was in my early 20s, EST included. My brothers, too. We truly were blessed and guided.
Your site has opened up so many realizations and I thought I’d share one with you. My maternal grandmother immigrated from Norway at age 9. Her parents sent for her and her 4-year-old sister. They had been in America for 2 years already, leaving the kids with an uncle. So she crosses the ocean alone to Ellis Island, 4-year-old sister in tow, speaking not a word of English, only to find them and then be immediately sent away to work in a doctor’s house as a live-in maid in Maryland. She never sees her parents or sister again — nor the doctor’s family after she turned 18, as they never adopted her and she moved to San Francisco.
She was a very proper woman, worked her way through nursing school and became a nurse, eventually Director of the Bay Area Red Cross. Probably a workaholic, not a stay-at-home mom, anyway, and this is the 1930s. But, the point of this whole story is… I mean, can you imagine her ACE score?…. here’s this robust Norwegian woman who seems to come through everything, and then, in her sixties (now my grandma), becomes completely inflamed with arthritis all through her joints. Totally swollen and hospitalized for months unable to move.
Big mystery to medicine right? Well, it’s solved now in my mind with toxic stress causing inflammation.
Anyway, thought I’d share my revelation!! Thank you again for your work. I will join AcesConnection. — Lauren
Wow. That’s an amazing story….and makes so much sense. What an amazing woman, your grandmother!! Thanks for sharing it. I look forward to seeing you on ACEsConnection!
– Jane
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Jane, this is fascinating stuff, I work with continuation junior high school students in West Sacramento and you are talking about 99% of them!
Jane: You are obviously way out ahead on this issue and making a great contribution. We’re trying a little project in Mid-Michigan to try to answer the question we get from “millennials” — the 18-30 year old set who say: What can we do about this? Tough question, but there are lots of great organizations that are dedicated to reducing stress in the lives of children and families, and until we figure out how to do more, we’re simply trying to push interest in the direction of helping these organizations find more volunteers. You can find us at http://WWW.EveryChildIsYours.Org.
Love your site! When you publish the winning story, I’ll link to it from here so that we can spread the word about what millennials and others can do to make the world a safer place.