For years, advocates for a statewide children’s mental health system would stand before Iowa legislators and speak passionately about their own particular concerns.
Psychiatrists pointed to a need for more inpatient beds for youth with severe mental illness. Pediatricians said the answer was better screening to identify mental health issues in children from birth to age five. Educators wanted more school-based mental health services, and advocates from grassroots groups like the National Alliance on Mental Illness (NAMI) asked for increased crisis services.
“We were all saying, ‘Throw money at this issue,’” says Chaney Yeast, co-chair of the policy coalition of Central Iowa ACEs 360, a multi-sector network formed in 2012. “That confused legislators; they felt it was this black hole, and they didn’t act.”
This year—thanks in part to connections forged by Iowa ACEs 360—advocates for a comprehensive child behavioral health system told a single story: Children whose mental health needs are met will be more likely to graduate, be employed and become productive members of the community. Current mental health services for children are fragmented and inconsistent. We know what it would take to fix that.
Group after group that testified before Iowa legislative committee members—officials from the sheriff’s department, mental health providers, community advocates, child welfare workers—drummed home talking points that the ACEs policy coalition had developed with a public policy messaging and research firm.
“That common messaging hit home. We were all on the same page,” says Yeast. The bill—which requires Iowa counties to implement a coordinated array of preventive, diagnostic and treatment services for children, and calls for parents of children with mental health issues to have a voice in designing those services—passed the legislature in April and was signed by the state’s governor in May.
“That was a huge win in terms of collaboration,” says Yeast. It was also a clear example of the power that cross-sector networks can wield when members move beyond their own silos to support a shared goal. Such work is not easy—“It takes a lot of time and effort to continually nurture those relationships and connections,” says Yeast—but it is essential to making long-term, systemic change.
That’s been the ambition of Iowa ACEs 360 since its start, when a small group of stakeholders—in public health, mental health, family support and community advocacy—gathered, with the support of the Mid-Iowa Health Foundation (MIHF), to discuss the original CDC-Kaiser Permanente ACE Study and how their work needed to change in response.
That group decided on two priorities: collect Iowa ACE data and spread awareness of the ACE Study, so others could be galvanized by its findings on the lifelong, corrosive effects of early childhood adversity.
After Rob Anda, the co-investigator of the 1998 ACE Study, did a presentation about the ACE Study to a small group of key stakeholders, an early step was to include the ACE module in Iowa’s Behavioral Risk Factor Surveillance System (BRFSS). Following an invitation-only summit in 2011 that featured a follow-up with Anda, he and Laura Porter, a nationally known expert on ACEs and population health, spoke to 800 people at the 2012 Iowa ACE Summit.
Suzanne Mineck, president of MIHF and one of the original committee members who launched ACEs 360, says “water cooler conversations” in the weeks following Anda’s visits that gave the work momentum. “We all had the privilege of learning about compelling research, but it was the lingering impact, both on those in decision-making places and those on the front lines, that was as much of an ‘aha.’”
As the coalition grew, hosting quarterly learning circles, developing work groups and, in 2014, acquiring a part-time program manager, it became a place where people from various sectors—juvenile justice, child welfare, health care and education—could learn together.
“It created a culture where there wasn’t a singular response…a culture of transparency, humility, honoring and supporting risk-taking,” says Mineck. “Many felt they were learning things for the first time together.”
That was the case for Christine Her, executive director of ArtForce Iowa, which helps youth transform their lives through art. “We got involved with Iowa ACEs 360 because we learned about the ACE Study. It was eye-opening for all of us. We started training all the adults who worked in our programs. We said, ‘We’re going to integrate all our art workshops through the lens of trauma-informed care.’”
Today, the coalition continues to focus on the big picture—systems change rather than direct service, policy rather than individual programs. Backbone support provided by both MIHF and United Way of Central Iowa has been key, along with having “someone at the end of the day whose job is cultivating a network and finding places for people to be engaged,” Mineck says. Now, group members are starting to see indications of their work’s impact at the highest levels.
Eight years ago, says Iowa ACEs 360 program manager Lisa Cushatt, elected officials and even some advocates had a hard time explaining ACEs and their effect on individuals’ lives. “Last year, I got texts from members of our policy coalition in the middle of a legislative floor debate, saying, ‘This representative just said ACEs in her floor comments and used the term correctly!’ And we had an actual bill pass on establishing a children’s mental health system.
“The pace of change is slow when you’re doing systems work,” Cushatt says. “In our policy coalition, we say: We’re here to do together what none of us can do alone.”
Resources:
- To learn more about Iowa ACEs 360, visit: www.iowaaces360.org
- For an overview of Iowa ACEs policy efforts, visit: https://www.iowaaces360.org/advocacy.html
- Watch a brief video on the history of Iowa ACEs 360: https://vimeo.com/325095706
This article was originally posted August 20, 2019, on MARC.HealthFederation.org and was written by @Anndee Hochman, a journalist and author whose work appears regularly in The Philadelphia Inquirer, on the website for public radio station WHYY and in other print and online venues. She teaches poetry and creative non-fiction in schools, senior centers, detention facilities and at writers’ conferences.
To read more from the MARC Shared Learnings series, visit: http://marc.healthfederation.org/shared-learnings
ACEs Too High LLC 
Diaper need is the struggle to afford adequate supply of diapers to keep a baby clean, dry and healthy. Diaper need is an adverse childhood experience. (see Megan V. Smith PhD/Yale ) Think: babies require diapers over a long period of time. One in three families experience diaper need. Mothers in the Every Little Bottom Study (an industry study/ Huggies (2010)) said their babies sleep poorly and become difficult to manage. How important is sleep for infants? (Take a look at the research). What would cost a country to provide a supplement of diapers to low-income families? Children are a nation’s most precious resource. Per report: Crisis in Child Mental Health (1970s) the Joint Commission said society must consider both human development and the environment in which children live, learn and shape themselves…..or we would be in trouble. End Diaper Need
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It is not believable that the early childhood trauma of circumcision was not included in this survey by accident. This trauma is routinely and pointedly ignored in the u.s. Even though it is undeniably severe and commonplace as a form of childhood trauma.
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This is wonderful, and so inspiring! This kind of cooperative, system-wide approach is what we need to address so many challenges. Thank you for sharing. Rev. Lynda Sutherland First Parish UU Church Northborough, MA Sent from my Verizon, Samsung Galaxy smartphone
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